One really important tool during autistic burnout recovery is 𝙖 𝙨𝙚𝙡𝙛 𝙘𝙤𝙢𝙥𝙖𝙨𝙨𝙞𝙤𝙣𝙖𝙩𝙚 𝙞𝙣𝙣𝙚𝙧 𝙫𝙤𝙞𝙘𝙚. Being able to respond to yourself with compassion. Even when things go wrong, even when you make poor choices, even when you make reasonable choices and it all goes kablooey. #ActuallyAutistic #AutisticBurnout #BurnoutRecovery #Burnout
I had my social care domiciliary care assessment yesterday. When they tried to push remote care for part of it, it was weird as pre-HRT, pre-lithium me would have had a meltdown, but now it's like whatever. If this happened to someone else I'd be furious, but for me, I feel incredibly removed.
I had to wake up super early today to see my girlfriend to the hospital to get face surgery, then come home for back to back meetings, and then I'll have to go right after for a visit to the hospital. What a day.
Very true. After 11 years, I still sometimes catch myself lamenting, that I "can no longer" do everything I did before burnout. Then, I remind myself, that I never should have done those things in the first place because they were part of the reason I ended up with a massive burnout.
I have a routine appointment today. I’d planned to revoke permission to use the ai transcription- I’ve noticed weird inaccuracies that while not critical are concerning. On top of all the other AI woes. Now I’m just more depressed about medicine in this country. And I really LIKE my doctor. She’s great. But doing notes that way is insane. federate.social/@jik/117390087…
Two successful new drug trials offering hope to people with Parkinson's, but which is most important? Find out more at 8 by subscribing to my Substack. open.substack.com/pub/rorycell...
Why do smokers get Parkinson’s less often? New evidence from half a million adults in China points to carbon monoxide, not smoking itself. tcnv.link/BXvW9vl
New idea to end the measles epidemic: anti-measles peptides Just make sure they bind all sorts of different HLAs Product of our lab‘s germinal center meeting today, I guess we went slightly off-topic
The SBC and the benefits calculator are both very squirrelly about what my coverage is for durable medical equipment (a CPAP). I think it's 100% covered, but if I hit my out of pocket limit, the cost line just says "cost varies".
Today is facial pain awareness day. The people in this video explain what it's like living with #trigeminalneuralgia. I myself have been living with TN and other facial nerve disorders for 30 years, 20 of them undiagnosed. youtu.be/8F8yflGHTTk?...
October 8, World Sight Day 👁️ Raises awareness of blindness, visual impairment and the importance of accessible eye care. 🌍 International Agency for the Prevention of Blindness (IAPB) / global eye-health community
Adderall is a fuckin' miracle. Been off any ADHD meds for a year. This week, I'm back on the lowest dose. Staying on task, and especially task SWITCHING is now _EFFORTLESS_. That stuff seemed impossible a week ago. Life-changing.
A list we run for members of the Irish ME/CFS Association we thought we would plug. #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #mastodaoine
i used to joke that the roaring 20s woulda been so lit getting weed tinctures at the same pharmacy you get amphetamines as a 'nasal decongestant' but now in the 2020s its kinda sad that everything is grey-legal weed and opioid stores and gas station heroin and gambling and AI and more gambling
What it means to run through menopause – and how to navigate the challenges Supported by ongoing research and today’s more open conversation about this stage of life, menopausal runners can emerge stronger, healthier and happier in the long run #Menopause #Perimenopause #Running #Run #GetOutside #RunFar runnersworld.com/uk/health/a44…
Today feels a little monumental. I was diagnosed with breast cancer 3 years ago. This has been really really hard. It was really hard because I’ve been raw dogging menopause. Today I get to start taking some stuff to help with that.
Got stabbed in the arm for the second time this month and feeling smug about it. Also I think my immune system just made a DHCP request.
I woke up this morning with a burst blood vessel in my eye and it doesn't hurt or anything but it looks so gnarly that I don't want anyone to have to look at it. (I wore glasses during tele-therapy because it hid it a little so I didn't have to look at it.)
Remembering my friend, Brooke, today. ALS can go fuck itself.
I'm so tired of doctors and lawyers and professionals generally assuming that disabled patients will have: - a printer - a desktop or laptop computer that works - ability to go places at will - ability to read dense writing on a dim or bright skin I have severe ME/CFS I'm not maintaining an office!
Content warningdisordered eating talk
Not being able to fit in the MRI along with my ongoing liver issues is really causing my issues around food to flare up. Very easy to restrict till I can't stand it. But I'm going to do my best to feed my body even if all I have to eat is pasta
Do “24 hour” pharmacies actually exist in the UK? All of the ones listed near me either (a) don’t exist, as in: appear to be a Google Maps data error, or (b) are in 24-hour Asda stores, but close at 8pm.
Finding a Dentist for Autistic Adults Dental visits can feel overwhelming for autistic adults because of sensory sensitivities, communication preferences, or unfamiliar surroundings. Finding a dentist for autistic adults means looking for a dental environment where individual needs are understood and respected. Clear communication, patience, and a predictable approach can help make appointments more comfortable. Visit here: 21stcentury.ae/
It’s incredible how much lower my Xanax/gummy intake has been since moving. I would take one of each almost every day before. The last four days, I’ve taken one gummy and that’s it. My anxiety level is so much better.
Don’t Try this At Home, Transcranial Magnetic Stimulation Edition hackaday.com/2026/10/07/dont-t…
Things have been quiet & stable with my husband since his last hospitalization in July for mania induced psychosis. He is so ADHD, but he can't take a stimulant in a manic state & has been off it for a while. His doctor started him on a low dose last week & it didn't go well. He started hearing
And to bitch further, the tooth they pulled out seems to hurt. They inserted a bone graft that I have to be careful of for three months, but it feels weird to put my tongue there and I can’t chew on that side of my mouth still because I haven’t been chewing on it for years now. I wonder how much the post for the hurt.
Looking at how rapid the flu is spreading (plus my parents are going to be visiting in a few weeks and they are old), got my #FluShot and #covid19 vaccine earlier today at CVS. It was quick, easy, and not that painful (although I'm sure the side effects kick in later, but it's worthwhile).
measuring this cough by how many packs of soothers I get through in a day, I'm down to half a packet, we might be through this soon
Increasing conversations about sleep in the professional sectors. As with sugar, lack of sleep underlies an overwhelming number of conditions--nagging and sometimes life-threatening.
I got the covid booster shot yesterday, and holy shit — it has knocked me on my ass. I feel like absolute _crap_. I know it will pass, but... ugh.
Měl jsem za poslední rok u sebe a okolí 3 větší zdravotní problémy/nálezy. Je pozoruhodné, jak ani s řadou doktorů v rodině, placeným Canadian Medical, specialistou v Motole, manželkou s PhD v biologii a nějakým přiměřeným obecným povědomím bych byl ve všech třech případech naprosto ztracen bez AI.
5 year old is having sedation dentistry done and the amount of work is making me feel super terrible as a parent.
A national shingles vaccination programme for the over-65s will commence in a phased basis from the middle of next year, the Health Minister has revealed. www.imt.ie/news/shingle...
I cannot believe just how great Trans Tape has been working for me. I don't get as flat as I want, but it actually alleviates a lot of the pain I have in my ribs, which I wasn't expecting at all. I genuinely wish my insurance covered this stuff because this is actually just a disability aid atp
I'm a freak for ibuprofen but not in a substance abuse way
Day two on the ADHD happy pills and the putative effect – I'm still not ruling out the possiblity this is all placebo – isn't as strong today. On the other hand that may be because the institutions of the EU are not as interesting as network switches.
Not exactly the coherent, transparent public health response we might have been hoping for. 2/2
Doctors do not throw the term “brain death” around. There is specific criteria that must be met and it is irreversible damage. Removal of life support by medical providers can only be done in the event of brain death, otherwise it is at the discretion of the patient’s next of kin or POA.
Obesity Treatment Market Growth Rate, Demands, Status and Application Forecast By 2034 Get Complete report@ datalibraryresearch.com/market…
I really appreciate famous people with a platform normalizing colonoscopies. It saves lives! It's an icky topic that makes many of us pucker but using humor helps. If you're putting it off, consider making that appointment. Also, VOTE please. People need insurance.
oh god… rotavirus has entered the chat please god please don’t let me get it too, i really really don’t want to experience that with a broken rib 🙏🏼
me: god why do i feel so off today? i stayed home so i could catch up but i just feel so unmotivated and paralyzed my wellbutrin, sitting untaken & forgotten on the counter: haha wow that’s crazy i definitely have NOTHING to do with that!
A virus was definitely not on my list of things to have this year but here we go. It’s been a while since I’ve been sick like that, it sucks.
For the medically fragile, the absence of active protection and care is a hostile force that inflicts catastrophic strain on a vulnerable body. It is systemic violence.
Ow ow ow ow. Squished so tight. Ow. This concludes my ~10 hour post surgery status update.
Update: 12 hours later and I’m experiencing pain in my wrist, shoulders, back, and hips. A driver going 5 mph or less did this! I can’t stop thinking how much worse this could have been if the driver hadn’t stopped, if they had been moving faster, or if the car was bigger. Cars are so dangerous!
Woke today and rather than push through that feeling, because gosh so is so much to do, I have decided to listen and simply report I don’t feel well. I ignore these signals so much but it takes a toll, it doesn’t get rewarded, and so it’s best to do the best thing for me. #selfcare
thinking back on my relationship with my (now former!!) psychiatrist he was so much less condescending and more helpful when i was high-masking and not out as queer and after i came out and everything deteriorated suddenly i needed to be handled with kid gloves
I have a confession...
