Kieran developed severe ME at 13 after glandular fever. He spent years bedbound, and unable to speak. Now 23, he’s working full-time. When asked how he improved, he said it was care from his family, advice from the ME community and possibly a bit of luck. #MECFS
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- @abrokenbattery.bsky.socialBluesky
- @stpaulsbay.bsky.socialBluesky
Heard of the FOXP4 gene link to increased #LongCovid? It can't be understood without #rs5522. When the overactive MR vacuum steals cortisol at the gate, it starves the GR pathways needed to fuel the FOXP4 lung barrier repair program. 🧬🫁🔋 #MECFS
- @stpaulsbay.bsky.socialBluesky
I don't know if anyone will ever realize how hard I fought to save people from a physical prison. I found the mechanism & recovery path for #MECFS, now in a peer-reviewed journal. Patients contact me saying they are better, yet it feels like yelling into a void. Please help amplify. 🧬💙 #pwME #rs5522
- @firebel.lyBluesky
Drove my car to pick up the family in town today. First time I've driven since Feb. I'm still a mess. Driving a mile has worn me out as if I ran a mile in the heat. Still need to nap every day or I start to crash again but better than before. #mecfs #longcovid
- @irishmecfsassoc.bsky.socialBluesky
We have given €54,000 from our research fund to the Solve ME/CFS Initiative over the years. #MEcfs #CFS #PwME
- @crookedneighbor.bsky.socialBluesky
WHOA Ngl though, if they can exempt a whole borough, they can exempt a disease that makes 75% of people unable to work #MECFS #FrailAndFurious @meactnet.bsky.social
- @stpaulsbay.bsky.socialBluesky
Researchers point to a "unifying theory" of chronic fatigue/disease, mapping shared disturbed biological networks across #MECFS, Long COVID, MS, & RA. But they miss the root cause. This network crash is driven by #rs5522 overactive MR receptors stealing the cortisol needed to fuel cells. 🧬🔋
- @alisakbeer.bsky.socialBluesky
I’ve been very quiet on here recently because I got Covid in early June and I’ve moved a few steps down the MECFS function scale ever since. It’s a good day when I have enough energy to leave the house, even just to get the mail, and I’ve had to be horizontal a lot more than pre-June.
- @tomkindlon.bsky.socialBluesky
"The survey has identified multiple different ways that psychologists can potentially give that support & help people with ME/CFS" Extract from British Psychological Society ME/CFS Guidelines (September 2026 Update) meassociation.org.uk/wp-content/u... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis
- @bfitzinar.bsky.socialBluesky
Mori's Birthday is today. Disabled, chronically ill, bedridden, currently sick. They're still short for their Sept meds & haven't even started being able to get their Oct meds. So a really good B'day gift would be funding their meds. Pls RS/QS. Pls do what you can. #HelpFolksLive2026
- @mrblkhwq.bsky.socialBluesky
Every family needs a #ManCEST Weekend. Get rid of the boundaries, be deeply intimate, breed to produce the next generation
- @dirigoblue.bsky.socialBluesky
- @dirigoblue.bsky.socialBluesky
- @fianna-ai.bsky.socialBluesky
#MoshaeSjefa in #MassEffect:Andromeda #masseffectandromeda
- @bansheemckenzie.bsky.socialBluesky
(( FAKE BODY, FAKE EVERYTHING!! )) You've got to manage.. ft. Mckenzie the Onchú 🦊🐺🦅🇮🇪 // #art #traditionalart #seaart #irishmythology #drawing
- @katesherrill.bsky.socialBluesky
Oh the things Mel must have cleaned up over the years at Forrester Creations... #BoldandBeautiful #BoldCBS
- @shamr0cker.bsky.socialBluesky
They’re acting like Dems now
- @carolynmichelle.bsky.socialBluesky
Misgendered! at the Sweetgreen
We gotta stop McAfees in this country
- @raccoonmoose.bsky.socialBluesky
Please help me exist
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