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196 posts · best match first · index holds 130,629 posts · last 36 hours · 0.84 s

Best match combines word and meaning matches. Phrases, hashtags, accounts and websites guide which posts fit; timely queries also favor recent posts. Match labels describe why a post appears, not its quality or accuracy.

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  1. Kieran developed severe ME at 13 after glandular fever. He spent years bedbound, and unable to speak. Now 23, he’s working full-time. When asked how he improved, he said it was care from his family, advice from the ME community and possibly a bit of luck. #MECFS

    Has the hashtagHealth
  2. @stpaulsbay.bsky.socialBluesky

    I don't know if anyone will ever realize how hard I fought to save people from a physical prison. I found the mechanism & recovery path for #MECFS, now in a peer-reviewed journal. Patients contact me saying they are better, yet it feels like yelling into a void. Please help amplify. 🧬💙 #pwME #rs5522

    Has the hashtagHealth
  3. @firebel.lyBluesky

    Drove my car to pick up the family in town today. First time I've driven since Feb. I'm still a mess. Driving a mile has worn me out as if I ran a mile in the heat. Still need to nap every day or I start to crash again but better than before. #mecfs #longcovid

    Has the hashtagHealth
  4. @stpaulsbay.bsky.socialBluesky

    Researchers point to a "unifying theory" of chronic fatigue/disease, mapping shared disturbed biological networks across #MECFS, Long COVID, MS, & RA. But they miss the root cause. This network crash is driven by #rs5522 overactive MR receptors stealing the cortisol needed to fuel cells. 🧬🔋

    Has the hashtagHealth
  5. @alisakbeer.bsky.socialBluesky

    I’ve been very quiet on here recently because I got Covid in early June and I’ve moved a few steps down the MECFS function scale ever since. It’s a good day when I have enough energy to leave the house, even just to get the mail, and I’ve had to be horizontal a lot more than pre-June.

    Has the hashtagHealth
  6. @bfitzinar.bsky.socialBluesky

    Mori's Birthday is today. Disabled, chronically ill, bedridden, currently sick. They're still short for their Sept meds & haven't even started being able to get their Oct meds. So a really good B'day gift would be funding their meds. Pls RS/QS. Pls do what you can. #HelpFolksLive2026

    Has the hashtagHealth

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